Pediatric Clinical Research Network SIG

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Annual Report

Co-Chairs: Alex Fiks, MD, MSCE, Children’s Hospital of Philadelphia and Richard Ruddy, MD, Cincinnati Children’s Hospital

SIG purpose/mission: The mission of the Pediatric Clinical Research Networks SIG is to foster the development and enhance the operations of collaborative inter-institutional research networks intended to improve child health.

Current SIG goals: To hold a highly productive and informative SIG meeting each year at the Pediatric Academic Societies meetings.

Annual summary: The pediatric clinical research networks (PCRN) SIG met in Baltimore at PAS on Saturday, April 30, 2016 from 8:30-11:30 am Hilton Baltimore's Holiday Ballroom 2. Approximately 30 individuals representing a wide diversity of pediatric clinical research networks attended at least a portion of the three hour session.

After introductions, the SIG conducted two new pediatric clinical research network consultations. The first was for the Organization of Urgent Care Health (OUCH) network. Amanda Montalbano, MD, MPH of Children's Mercy in Kansas City presented. The second was for a Reach Out & Read research network - ROR-Net. Robert Needleman, MD, Alan Mendelsohn, MD and Perri Klass, MD presented on behalf of ROR-Net. Rich discussions followed both presentations, as presenters received insights and advice from the group. The SIG session concluded with presentations by Alex Fiks, MD, the new Director of Pediatric Research in Office Settings (PROS), and Iman Sharif, MD, the new Director of the APA Continuity Research Network (CORNET), on network transitions. Evaluations of the session are not available at this time.

Other accomplishments for the past year can be seen below: Drs Wasserman and Fiks hosted a "Practice-Based Research Network (PBRN) Research with Children" discussion at the June 2015 North American Primary Care Research Group (NAPCRG) PBRN Conference in Bethesda, Maryland. They will be leading a similar session at the 2016 NAPCRG PBRN session. The sessions provide an opportunity for pediatric clinical research network leaders in primary care to network and address common areas of interest.

Finally, recruitment is under way for new chair or co-chairs of the PCRN SIG.

April 2017 Newsletter Article

The Pediatric Clinical Research Networks Special Interest Group (PCRN SIG) will be meeting at PAS from 8:30 – 11:30 on Saturday morning, May 6th in the Marriott Marquis, Sierra Suite I.

The PCRN SIG is a forum for PAS members who either are involved in or are planning to establish clinical research networks (defined as enduring multi-site clinical research collaborations).  Representatives of a diverse group of primary care (PBRNs), specialist, and disease-specific networks meet to discuss common challenges and potential solutions to those challenges, offer consultation to those planning or launching new networks, and hear other news on topics of interest to network researchers.

This meeting will feature presentations on two new networks.  Drs Christine Turley of the University of South Carolina, Robert Annett of the University of Mississippi and Paul Darden of the University of Oklahoma will present on the IDeA States Pediatric Clinical Trials Network (ISPCTN) network .  Dr Christina Olson of Children's Hospital Colorado will present on the Standardized Pediatric Research on Outcomes and Utilization of TeleHealth (SPROUT) network.  After each presentation, attendees will offer consultation to the presenters on starting and building research networks.
In addition, we will have sessions on:

  • Using a single IRB for multi-centered trials:
    • Rachel Sak, RN, MPH, Elena Hoskin, MPH CCRA and Nate Buscher will present  UCSF’s Biomedical Research Acceleration, Integration, and Development (BRIAD) program
    • They will be joined by John Finkelstein, MD of Boston Children’s Hospital in a discussion about implementing this new rule.

  • Internetwork collaborations featuring :
    • Karen Wilson, MD of Pediatric Research in Inpatient Settings (PRIS)
    • Iman Shariff, MD  of Continuity Research Network (CORNET)
    • Richard Ruddy, MD of Pediatric Emergency Care Applied Research Network (PECARN)
    • Alex Fiks, MD of Pediatric Research in Office setting (PROS) and Pediatric Research Consortium (PeRC)
    • C. Jason Wang, MD, PhD of PCHA-UHA Primary Care Physician Network

We look forward to seeing network researchers from both new and experienced networks on the morning of May 6th.  We will send an APA Listserv reminder in mid-late April.

Alex Fiks, MD and Richard Ruddy, MD
PCRN SIG Co-Chairs

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Current SIG Co-Chairs:

Alexander Fiks, MD
34th Street & Civic Center Blvd
Philadelphia, PA 19104
Phone: (267) 426-2304

Richard Ruddy, MD
3333 Burnet Avenue, MLC 2008
Cincinnati, OH 45229-3039
Phone: (513) 636-7973



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