Health Care Transition and Disease Self-Management SIG


Membership to Special Interest Groups is open to all APA members.
To join a SIG, click here

Vision

Our vision is create, through collaboration, research and policy making, a system of health care that supports optimal health of youth and young adults with special health care needs and developmental disabilities during transition to adulthood.

Mission

Our mission is to create a forum to promote discussion, collaboration, research and innovation among scientists, clinicians, advocates, policy makers, as well as youth and families who are interested in improving the health and healthcare of youth and young adults as they transition from adolescence to adulthood, from child health systems to adult health systems.

Goals

The goals of the Health Care Transition and Disease Self-Management SIG are to:

  • Host an annual meeting that promotes discussion and collaboration related to research, clinical care and policy
  • Collaborate with specialty societies and advocacy organizations to encourage discussion and review and promote best practices
  • Maintain a list serve to foster communication among members of the SIG and others interested in Health Care Transition



Annual Report


Co-chairs:
Lynn Davidson M.D.
Assistant Professor of Pediatrics
Family Care Center/Division of General Pediatrics
Montefiore Medical Center
 
 Jason Woodward M.D., M.S.
Assistant Professor of Clinical Medicine and Pediatrics
Adolescent and Transition Medicine
Cincinnati Children's Hospital Medical Center

Parag Shah MD, MPH
Assistant Professor of Pediatrics
Ann and Robert H Lurie Children's Hospital of Chicago

SIG purpose/mission:
Our mission is to create a forum to promote discussion, collaboration, research and innovation among scientists, clinicians, advocates, policy makers, as well as youth and families who are interested in improving the health and healthcare of youth and young adults as they transition from adolescence to adulthood, from child health systems to adult health systems.

Goals

Current SIG goals:

The goals of the Health Care Transition and Disease Self-Management SIG are to:

  • Host an annual meeting that promotes discussion and collaboration related to research, clinical care and policy
  • Collaborate with specialty societies and advocacy organizations to encourage discussion and review and promote best practices
  • Maintain a list serve to foster communication among members of the SIG and others interested in Health Care Transition

Annual summary:

The 2017 Pediatric Academic Society Health Care Transition and Disease Self-Management (HCT-DSM) SIG in San Francisco featured a theme of "Quality Improvement Initiatives in Health Care Transition." The SIG session included nationally-known experts in the field of health care transition who described their quality improvement and research projects that have addressed barriers to quality care during the transition period.  The new format included a panel of three experts and three stand alone presentations.   The three person panel each spoke for ten minutes and were followed by a 30 minute question and answer session.  Initial feedback on the theme and presentation format, as well as this year's speakers, was very positive overall. 

Meggie Okumura, MD, is an internist and pediatrician and researcher at UCSF.  She described various ways of conceptualizing Quality Improvement. She discussed SQUIRE guidelines for reporting along with "fishbone" and Logic models for structuring QI initiatives.

Gregory S. Sawicki, MD, MPH, is a pediatric pulmonologist and health services researcher with particular interest in addressing health outcomes, disease self-management, and adherence for children, adolescents, and young adults with chronic respiratory diseases including cystic fibrosis (CF) and asthma. Dr. Sawicki is currently the Director of the Cystic Fibrosis Center at Boston Children's Hospital. Dr. Sawicki reviewed quality improvement measures for health care transition and tips for effective quality improvement measures in general. He described the triple aim of experience of care, population health, and cost as it relates to health care transition. He also discussed a health transition quality measure that he developed, known as the ADAPT.

Marybeth Jones is a med-peds trained general academic pediatrician from University of Rochester Medical who worked as a project manager for transition improvement initiatives led locally by Dr. Brett Robbins and mentored by the Got Transition team, led by Dr. Patience White. She discussed their Quality improvement project using the Six Core Elements Tools from Got transition (www.gottransition.org).  She discussed their process for bringing together pediatric and adult providers,  the tools used, the spread from the endocrinology department and the lessons learned.

Al Hergenroeder, MD, is a pediatrician at Texas Children's Hospital who discussed using quality improvement methodologies to increasing provider usage of a homegrown EMR based transition planning tool.  We learned about successful methods and strategies to incentivize providers. 

Sophie Jan is a pediatrician in a complex care service at the Children's Hospital of Philadelphia, Medical Director of MINT, CHOP's Adult Transition Consult Service, and a general internist at the University of Pennsylvania Health System.
She will become the Division Director of Ambulatory Pediatrics at Northwell. Dr. Jan discussed concerns about complex adult patients in pediatric hospitals and a program she developed to assist transferring adult medical providers

Tom Davis, MD is an internist and pediatrician who runs a complex care clinic at at Geisinger Health System.  He described how an adult complex care program with some added support could save multiple costs, specifically inpatient, with a well designed follow up program.

There was robust interest and discussion after each of the sessions. Many  of our authors have been generous to allow us to share a PDF of the presentations with our members. The presentations and some associated resources will be shared with our SIG members.

Other groups that work in our area of interest:

  • APA Complex Care SIG
  • APA Developmental Behavioral SIG
  • Health Care Transition Research Consortium
  • Got Transition
  • MPPDA – Med Peds Program Director Association
  • Society of Adolescent Health and Medicine
  • Society for General Internal Medicine – Adults with Complex Conditions Originating in Childhood
  • American College of Physicians – ACP Council of Subspecialty Societies
  • Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care, Baylor College of Medicine


Previous Newsletters




Current SIG Co-Chairs:


Lynn Davidson, MD
3444 Kossuth Ave
Bronx, NY 10467
Phone: (646) 327-9460
ldavidso@montefiore.org

Parag Shah, MD, MPH
345 West Fullerton Parkway
Chicago, IL 60614
Phone: (773) -41-4655
parshah11@yahoo.com

Jason Woodward, MD
3333 Burnet Ave
Cincinnati, OH 45229-3026
Phone: (513) 803-4793
jason.woodward@cchmc.org


 

Scholars

Renew Membership

Join APA

Donate

APA Journal

MailingList

ResidentFellow